The Cystic Fibrosis Buyers Club, set up in the UK by parents of children with the condition, is hoping to help some patients import generic versions of Vertex’s cystic fibrosis drug Orkambi (ivacaftor/lumacaftor) from Latin America. Health advocates hope the move could lead to a compulsory license for Orkambi and believe that buyers clubs could be used more frequently in response to medicine prices that prohibit access to medicines.
Three years after UK health technology assessment body NICE initially rejected Orkambi, claiming that £105,000 was too high a price...
